I started my period around the age of 12. I had such painful ones.
As the years went on I would collapse with the pain. I couldn’t get out of bed and missed school. I was sick and spent my time curled up in bed with a hot water bottle. I finally went to see the doctor and he advised me to take paracetamol and carry on.
I started the birth control pill at a young age to see if it would help with my periods. It regulated them, they became less heavy and more bearable.
In my twenties I had to stop my pill due to the migraines I was experiencing. I decided I would see how I got on naturally.
I was confused because then I didn’t have periods at all. A year went past and I only had two. I thought it was time to go see a doctor. I gave it plenty of time for the pill to be out my system and for my body to adjust. At first the doctor said ‘are you trying for a child?’ I replied ‘no.’ His solution; ‘see how you go over the next couple of months.’
I had three periods in those 6 months.
I met my husband and fell in love, got engaged, married and we decided to try for a baby. Nothing happened. I went back to the doctor and told him I had only 3 periods this year. He decided to send me for an ultrasound. I went along thinking nothing of it.
Just a routine appointment.
When I got there she started the ultrasound and told me I had polycystic ovaries.
I was laying there thinking what on earth is that? I asked her if this is stopping me from having a baby and if it’s stopping my periods. She explained I may struggle to concieve naturally, not to Google anything and let my GP go through everything.
Of course I’m going to Google it! I have no idea what it is and you just basically said. Can I have a baby?
Baby is all I heard.
I went home and searched, these were the symptoms that came up:
– Male hormones
– Facial hair
– Hormonal imbalance
– Painful periods
– Pain when cysts form
– Risk of diabetes
– Weight gain
I sat and I cried and cried.
This is what I have to look forward to.
My weight was actually good and I had no facial hair. I suffered with blemishes but I wouldn’t call it acne.
If you are new to PCOS you can find some information about it here on the PCOS awareness association. Please don’t suffer in silence. There are some wonderful supportive people out there. It took me a while to find them to but I’m glad I did. There’s some great people on twitter sharing their experiences via #pcos or #cyster.
I rang my GP and he arranged a blood test and referred me to a gynaecologist.
I waited two months.
When I finally saw him he asked all kinds of questions. How long have you been trying to conceive? What is your cycle like?
I just wanted him to tell me it was possible to have a baby.
He read my results to me and said I have polycystic ovaries without the syndrome. Meaning I had cysts all over my ovaries and I wasn’t ovulating. The egg was becoming a cyst. I was sent for a laproscopy and they confirmed polycystic ovaries and endometriosis. It took me a few months to recover from the procedure.
He said we should start clomid. It didn’t work for me.
We were told our best option of conceiving would be IVF now.
I needed a period so they gave me provera to help start one.
I also had acupuncture before they did the egg retrieval to help with the blood flow to my uterus. I really do think this helped. I also felt relaxed and stress free. You feel sore after in the area they place the needles and I got a headache sometimes. But worth it. I focused on my end goal.
We were referred to a fertility clinic they were amazing. Caring and empathetic. We were kept well informed.
We started our IVF treatment, two needles a day, a drug to stimulate your ovaries. The drug was called gonadotrophin. You may be given a HCG to mature your eggs. I had to go for regular scans to make sure my ovaries weren’t over stimulated and to check for signs of ovarian hyperstimulation syndrome as this can be dangerous. Luckily, I was ok.
I had the egg retrieval once they were mature enough to collect. I was given a sedative while they retrieved them. Once they retrieved them I waited 3-5 days for the transfer.
I had the dreaded two week wait once the eggs were transferred.
Two weeks later we were very lucky we were successful and I can’t tell you the excitement and relief I felt that day. I must have done 20 tests over the course of 3 weeks to double check.
I’ll skip the pregnancy and birth part. By all means you can read about my experience in my other blogs. It’s not a very happy story.
My polycystic ovaries didn’t cause any problems throughout my pregnancy.
Several months after having my daughter I was having periods as normal and have done since having her. One extreme to another.
They are painful and very heavy.
I get pains shooting down my leg, lower abdomen and around my ovaries. It’s just awful. Tablets don’t touch it. I have to have a hot water bottle or I use the hair dryer. It sounds bonkers I know but it works for me. And in that moment I don’t care. I just sit and cry because sometimes the pain is just to much and I get frustrated and tired because I can’t get comfortable.
I get hot flushes. My weight is up and down. My skin is bad. Hormonal imbalance.My hair falls out.
I couldn’t go back on the pill because of the risks of blood clots and migraines. I did try the mini pill but it was horrible it made my hair fall out and have a constant heavy period.
I am at the stage now where I’m being referred back to the gynaecologist. My hormones are all over the place. It could be my PCO or it could be because of the IVF. I don’t know. I’m two years on now.
Hormones are sh*t
If you have PCOS or PCO without the syndrome what is your experience and how did you manage?
Twitter – @KTMummy